Patient Symposium*

*Please note that this event will be held in German

Hereditary retinal diseases pose challenges for medicine, research and those affected. This is because they are rare and very heterogeneous. It is therefore often difficult to diagnose them clearly. A clear diagnosis is extremely important, as it can have far-reaching effects on the life planning of those affected. What's more, the diagnosis makes it possible to understand the causes of incurable retinal diseases and thus paves the way for the development of therapies. For this reason, one contribution by an affected patient at this symposium will shed light on the genetic findings. The experts will also provide an overview of current gene therapies, an insight into the current state of research, an outlook for the future and discussions with those affected.

Program

12:30 PMGet together and snacks

1:00 PMWelcome  
Prof. Dr. Katarina Stingl, University Eye Hospital Tübingen  
Dr. Sandra Jansen, PRO RETINA Germany e. V.

1:05 PMTribute to Prof. Dr. med. Dr. h.c. mult. Eberhart Zrenner, honorary member of PRO RETINA Germany e. V.  
Speech: PRO RETINA Germany e. V.

1:20 PMBasics: Genetic findings – why and what is important?  
Dr. Susanne Kohl, Institute for Ophthalmic Research Tübingen

1:40 PM5 years of Luxturna: What have we learned?  
Prof. Dr. Katarina Stingl

2:00 PM Gene therapy for children  
Prof. Dr. Claudia Priglinger, Prof. Dr. Siegfried Priglinger, both from the Eye Clinic of LMU Munich

2:20 PM Luxturna – Long-term effects and therapy safety  
Dr. Sandrine Künzel, University Eye Clinic Bonn

2:40 PM Break

3:00 PM As a study patient in the clinic  
Melanie Kempf, M.Sc., University Eye Hospital Tübingen

3:20 PM The patient registry of PRO RETINA Germany e. V.  
Dr. Sandra Jansen, Head of Diagnosis and Research, PRO RETINA Germany e. V.

3:40 PM Introduction to the PRO RETINA Consultation in Tübingen  
Gabriele Roever, PRO RETINA Germany e. V.

3:50 PM Discussion Round  
with Dr. Sandrine Künzel, Prof. Dr. Claudia Priglinger, Prof. Dr. Siegfried Priglinger, Prof. Dr. Katarina Stingl, and affected individuals

4:50 PM Closing lecture and outlook: Gene therapy: What’s next?  
Prof. Dr. Katarina Stingl

This Symposium will be held at 
Universitätsklinikum Tübingen, 
HNO Hörsaal
Elfriede-Aulhorn-Str. 7
72076 Tübingen

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